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Within the Use Case Cardiology of the HiGHmed consortium, clinicians, medical informatics specialists and data scientists from six university hospitals (Berlin, Göttingen, Hannover, Heidelberg, Kiel and Würzburg) and numerous partners from science, industry and healthcare are working on the goal of improving healthcare for patients with chronic heart failure in the long term through the use of medical informatics technologies.
In order to achieve this, the health data of patients with chronic heart failure at the participating HiGHmed sites are described in a uniform manner, compiled in the Medical Data Integration Centers at the university medical sites and made available for cross-site evaluations of research.
In total, 3.752 patients have already been recruited (as of January 20, 2022) and 2.855 patients have been contacted by telephone after their enrollment (follow-up). The Hannover Medical School (MHH) alone has already recorded 1.000 recruited patients.
HiGHmed thus makes medical data collected in routine care usable for research. Disease-related information - routinely collected during a hospital stay - is documented, coded and stored in a uniform manner and then evaluated across sites in compliance with all current data protection regulations and in accordance with the patients' declaration of consent.
In the future, high-risk patients will be identified at an earlier stage and approaches for more individualized treatment will be developed.